Showing posts with label Autism. Show all posts
Showing posts with label Autism. Show all posts

Wednesday, April 27, 2011

Autistic track star sidelined by bureaucracy


Autistic track star sidelined by bureaucracy
EDUCATION REPORTER— From Monday's Globe and Mail
In a number of ways, Andrew Towle is exceptional. He was diagnosed with autism and started high school well behind academically, but the 19-year-old recently won a place on his school’s honour roll and on their track and field team.

Now he has been told he can’t compete – no exceptions.

The body that oversees high-school sports in Ontario says its eligibility rules are firm. Even though Andrew makes the age cutoff, and didn’t take a single Grade 9 class in his first year at Ottawa Technical Learning Centre, the federation has blocked him from competing this year on the grounds that he’s been in high school too long.

The eligibility clock began ticking the moment Andrew walked through the front doors of Ottawa Technical, the Ontario Federation of School Athletic Associations says, and his five years are up.

There are no appeals.

The decision was a shock to Andrew, his teachers, his coaches and family, who have watched him come a long way only to be sidelined by bureaucracy.

Most provinces have similar rules to Ontario’s, which match a student’s years of eligibility to the length of an average high-school career. Executive director Doug Gellatly says OFSAA receives about one inquiry a year from a student seeking to dispute their eligibility, and that they’re told the rules are firm.

That unbending approach could be tested in coming years. The prevalence of autism spectrum disorders among students has grown, and autistic athletes are finding a natural fit and a sense of normalcy in endurance sports.

“Why be this inflexible and bureaucratic with something that’s so important to these student competitors?” said Jonathan Towle, Andrew’s father. “It’s just very unfair.”

The rule that excludes him is meant to promote inclusion: OFSAA has put a five-year limit on eligibility so that more students get a chance to participate.

“We didn’t want to get into dealing with all kinds of different circumstances,” said Mr. Gellatly. “… We thought it was just better to have a clean rule, give them five years and beyond that give other kids the chance to participate.”

Andrew spent his first year at Ottawa Technical Learning Centre taking non-credit courses, bringing his academics up to speed in preparation for Grade 9. It was in his third year, on a whim, that he joined one of the track team’s practices.

“At my first ever practice race, I finished in last, and I told myself I got to do better,” Andrew said. “So I pretty much kept on going and my goal every time was to improve.”

A year and a half later, he was winning races. He was one of the top five long-distance runners in the Ottawa region and he won a spot to compete at the provincial championships.

It was about that time that his grades started improving. He made friends on the team and developed a sense of sportsmanship.

“Until running came along there wasn’t really anything he could identify with, now he can say, ‘I’m a runner,’ ” said Andrew’s father. “That’s really given his life a focus, it’s shown him that if he works hard he can succeed at things.”

Autistic people like Andrew often have learning difficulties. Growing up, he struggled with language and socialization, his senses were easily overwhelmed and he sometimes lashed out or lost his temper.

The disorder is marked by a withdrawal from the outside world – it’s Greek root, autos, means “self.” Andrew’s coach at the Ottawa Lions Track and Field Club, Vince Fay, believes this might explain why he has recently seen a number of autistic youth show an interest in the sport.

“I’m no expert, all I can tell you is that they seem to thrive,” he said. “… Anyone who runs, you sort of go into your own world.”

Andrew says he likes that there’s not a lot of body contact in running. He often runs to school, has completed six half-marathons, and hopes to one day be a part of the University of Ottawa’s cross-country team.

OFSAA should determine athlete eligibility on more of a case-by-case basis, according to Jim Denison, director of the Canadian Athletics Coaching Centre and a professor of physical education at the University of Alberta.

“They should have some leeway to evaluate cases as opposed to a blanket five-year rule,” he said. “I totally understand why they’re doing it, they’re trying to do their best to … create a fair advantage for everybody, so it’s a difficult situation.”


Andrew XC running Oct 2009


Saturday, January 15, 2011

Tommy Des Brisay - "The First Fastest Runner"

We're delighted to introduce you to Tommy Des Brisay...

Tommy Des Brisay and his father, Peter Des Brisay
"Tommy is an athlete with Autism who lives in Ottawa, Canada. Tommy was always a "runner" (a term used for kids with Autism who often run off or wander), and has had an Autism Service Dog, whose role is to help keep him safe, since the age of 7. In 2006 he began running (in the correct direction!) daily with his Dad and Matrix (his dog). Soon, Matrix and his Dad could no longer keep up! His Dad now rides a bike beside him to keep him safe during runs.

Tommy races in road races, high school cross country and track races, and trains with the Ottawa Lions. He also cross-country skis, and has competed at the Ontario high school championships. Recently, Tommy began paddling with "Paddle All" at the Rideau Canoe Club. He is just one of a number of athletes in Ottawa who have overcome many different challenges to achieve remarkable things through athletics.

Tommy did not begin to talk until the age of 7, and it was primarily through learning to read that he began to learn language. While running, Tommy often chants "I think I can...", recites lines from Disney movies, or sings. He crosses each finish line with great personal pride. Empowered by athletics, he is conquering enormous communication challenges and other aspects of Autism. Tommy inspires many through his determination, enthusiasm for life, and the huge smile always on his face while competing! The Ottawa athletic community has warmly embraced Tommy's uniqueness.

Tommy's mantra is "I'm going to be the first fastest runner in the world!", which inspired the title of this mini documentary. Thank you, Jordan and Dave, for capturing the joy that is Tommy's running and sharing it with others."

I'm hoping to someday see Tommy & Alex line up side by side at a race start line, (that Great Canadian Goat Run perhaps?!) though Tommy will leave Alex in his dust by the finish line.

How fast is he? Here's his PB's:
5k- 16:43
10k- 34:32
Half Marathon 1:18:04

Track PB's:
3000m 9:21
1500m 4:23




Tommy's YouTube Channel

If you're ever running in Ottawa and spot Tommy and his big smile, say hello!

Sunday, January 9, 2011

Autistic runner moving up fast in 5K pack

Autistic runner moving up fast in 5K pack


Robert Sansaricq with his mother, Mary, and father, who is examining some the running medals Robert won in 2010. (David Lee/Hudson-Catskill Newspapers)
Robert Sansaricq and his father, Ralph, run at their home in Ghent. Robert, who has autism, is rapidly decreasing his 5K race time as he competes in more of the runs. (David Lee/Hudson-Catskill Newspapers)

By John Mason
Published:
Wednesday, January 5, 2011 12:06 PM EST
GHENT — Robert Sansaricq, 19, began running competitively in April. In seven months, he shaved more than five minutes off his time in the 5K run, dropping from a time of 25:37 at the Sean French Run in April to 20 minutes flat at the Chatham Turkey Trot in November.

His Turkey Trot time was good for 25th place overall, out of a field of 312.

Why has such a natural runner kept his light under a bushel?

Robert was diagnosed with classic autism at the age of 2. He is not mentally retarded, but he is non-verbal — the part of his brain that controls communication does not function normally.


His mother, Mary Sansaricq, gives a lot of credit to the Wildwood Center in Schenectady, where Robert has been a student for seven or eight years, for helping him develop his receptive language.

“They’re experts, they know what they’re doing,” she said. “He’s well-behaved and making contributions to society.”

Robert has always been a good athlete. He likes to ski, bowl and swim. But it wasn’t until his father, Ralph Sansaricq, 53, came up with a running injury earlier this year that Robert began to take up running seriously.

When Ralph was slowly working back into form, he took Robert along with him on runs.

“We started with one mile in April. I found he had good foot placement and a good stride,” Ralph said.

So they tried the Sean French Run later that month. Ralph, a former track standout at Iona College, was amazed at how well his son did.


Next, they entered the OK 5K race in Kinderhook, where Robert shaved off more than two-and-a-half minutes, coming in at 22:58. That was followed by the Silks-and-Satins 5K in Saratoga Springs, where he finished in 22 minutes flat.

“It’s a rare thing for a Special Olympics athlete to perform at a high level with regular runners,” Ralph said. “Everyone was applauding.”

Since then he’s run in about a dozen races and has five medals to show for it.

“I start with him, get him out in front with the top runners,” Ralph said. “We’re trying to get him to stay in front. Right now his pace is 6:30 minutes a mile. The top runners are 5 or 6 minutes a mile. He’s losing ground, but holding his own.”

Foot trails have been forged through the calf-deep snow around the Sansaricq house. Ralph dubs it the “Sansa Trail.” One circuit is a quarter-mile. Together, the father and son do four to make a mile.

Ralph varies their training regimen. One day a week they do roadwork with the Kinderhook Runners Club to get used to running in a group. Another day they’ll run on the track to develop speed. Another day they’ll run on Ostrander Road to benefit from the hill work. Another day they run on forest trails to get accustomed to different surfaces.

They run 15 to 20 miles a week over four or five days. They also try to get in one swim a week, sometimes as much as 40 laps.

“Robert’s significant impediment is in speech,” Ralph said. “It affects his motivation and his ability to imitate. So it’s important for him to have a trusted coach, a running buddy and a dad, all in one.”

What language Robert does have is largely echolalic — he will repeat things that have just been said to him, but will add his own variations.

Asked if he likes swimming, he said, “Do I like swimming? Yes.”

Asked if he likes running, he said, “Do I like running? Yes!” with a telling emphasis on running.

“It appeals to him because it’s a chance to express himself physically in a way he’s comfortable with,” Ralph said. “He loves to be outdoors. He likes trails and roads, not a track. That’s a little too regimented. He prefers to run in a natural environment. He loves Columbia County — he can’t help but respond to nature in Columbia County.”

Ralph said the experience has also created a stronger bond between father and son.

“Through Robert, I volunteered to be a Special Olympics coach,” he said. Robert helped Ralph get back in shape and Robert has become more connected, more verbal and a better student at school.

“We communicate non-verbally,” Ralph said. “I sense just where Robert’s at. There’s nothing like doing an activity with your son. This ongoing process has been a joy.”

“It’s so important to keep Robert engaged, keep him part of life,” Mary said. “We tried piano. He still does adaptive skiing and he goes to Paul Newman’s Hole-in-the-Wall Gang Camp every year.”

Mary is the president of the board of Special Needs in Columbia County.

“There was no Special Olympics team in Columbia County,” she said. “We’ve been looking for a team for years. I brought it to the board of Special Needs. When we first met Mark French, it solidified.”

French recently became an administrator at Special Needs.

Special Needs is now fielding teams in softball, snowshoeing, polar plunge, bowling and track and field.

“There’s so little in this county for special needs kids,” Sansaricq said. “Most of them go to Wildwood or Kingston Children’s Annex, Devereaux or Anderson. There’s nothing in the county for students to live at home with their families and get special services.”

But the Special Olympics team is “getting bigger and bigger,” she said.

“Physical engagements make for a healthier lifestyle. Autistics can languish,” she said. “But if given the opportunity to engage, they flourish.”

In July, Ralph is hoping Robert will be the first student to represent the Wildwood School in the Corporate Challenge 3.5 mile race in Albany. Ralph will run as a representative of the New York state Department of Taxation and Finance, where he is a trainer.

The pair have other plans as well. One is to break the 20-minute 5K, another is to run the half-marathon, 13.1-mile Mohawk-Hudson River Run.

Wednesday, December 9, 2009

CBC Interviews - Autism Search & Rescue, challenges & strategies

Our deepest sympathies go out to
James Delorey's family, friends and community


CBC contacted me the morning of December 8th, after James had been found in thick brush and snow, two days and nights after following his dog Chance into the woods near his home in Cape Breton. James had been airlifted to the IWK Children's Hospital in Halifax in critical condition suffering from extreme hypothermia. They wanted to do a story on "the challenges or strategies that could be involved in searching for a lost person with autism" and because Alex and I had given a training session to PEI's Ground Search and Rescue volunteers in January, they hoped I could provide that information.

Moments before the interview began, Kerry Campbell got a call informing him that James had died. He relayed that information to me. As soon as he left I sent him the following email, part of which he shares in the TV News interview.

Hi,

Just so you know..... I could acknowledge the news of James' death or do that interview but not both. I wish I could have expressed my sympathies at the time but then you wouldn't have your interview.

It's good that parents of Island autistics will know that PEI's Search & Rescue members have autism specific training. Especially now.

Thanks

-j
The interview resulted in the following CBC TV Compass News Interview (2:27) and CBC Radio Island Morning interview (6:47)





For more information on Alex's ID bracelet, click HERE



I'd like to repeat some thank you's
I made in that post after our January presentation:

Thank you Phil for inviting me. Thank you Dennis for supporting & advising me and for sending me your yet-to-be-released First Responder video to show, and getting it here, just in the nick of time. Thank you Brian for your moral support and wise contributions. Thanks too to the SAR guys who took care of the technical end of things for me today. And to all the volunteers who make up PEI's Search and Rescue - thank you for today's great discussion and your kind words of feedback afterwards. Thanks especially for the work that you do and the work that you are prepaired to do. I hope you learned some valuable things today but I also hope you'll never have to put any of that knowledge to use in a rescue and/or emergency situation.

Thank you for helping us make PEI a better, safer, place for all autistics.


Thursday, November 26, 2009

Olympic torch lights autistic boy's dream

Alex is not the only autistic Torchbearer in the 2010 Olympic Torch Relay. Thirteen year old
Mackenzie Allan will get his turn to carry the flame on Day 62 - December 31st at 1pm in Barrie Ontario.

Like Mackenzie's parents, Alex's parents also
"hope other families touched by autism can embrace kids' potential despite the numerous challenges".

When Alex wrote his winning essay to Coke, he asked that, as an autistic and a distance runner,
Coke pick him to "represent and celebrate active and diverse Canadians".
We'll be watching and celebrating Mackenzie's run too!



http://thebarrieexaminer.com/ArticleDisplay.aspx?e=2187994

Olympic torch lights autistic boy's dream

Torchbearer's parents hope other families touched by autism can embrace kids' potential despite the numerous challenges

Posted By RAYMOND BOWE

Mackenzie Allan could sing the lyrics to O Canada before he could even talk.

So it's only fitting that the 13-year-old autistic boy, who lives in south Barrie, will be one of 12,000 people to carry the Olympic torch in the coming weeks leading up to the 2010 Olympic Games in Vancouver.

For his parents, Brad and Catharine, it's also a dream come true, seeing their son's progression effectively taking him to the world stage. He has overcome learning difficulties and frequent meltdowns -- even sitting still had been a challenge.

Mackenzie's father submitted Mackenzie's name for the Torch Relay and was selected in July when the family was camping at Algonquin Park. He will carry the torch for 300 metres on Dec. 29, beginning at 1 p. m., from Midland Town Hall to the local RBC branch. The special warm-up uniform arrived last week.

The torch will be in Simcoe County on Dec. 29 and Dec. 30.

Mackenzie said he feels "pretty good, happy and excited" about the opportunity.

"The reason we're doing this is for the parents," Catharine said.

"When you get the diagnosis, you feel like your life is over. To parents, I just want to say, 'Don't give up. Work with your child.'" "Sometimes autism is scary," she added. "The world is getting better with (how it responds to) autism. We have to get along and the Olympics is about everybody."

Mackenzie's parents don't expect he will become nervous during his leg of the relay.

"He likes the limelight," said his dad. "Don't give him a mic."

Mackenzie was diagnosed at about 30 months old, when the family lived in Sioux Lookout. His form of autism is considered high-functioning.

"It took a long time for him to speak, but everyday he would hear O Canada (at school)," said Catharine, a registered nurse in Royal Victoria Hospital's emergency department. "He started singing the words, but we hadn't really had him talking.

"We were almost in tears, so O Canadareally meant something to us," she added. "It was hope. He was saying the odd word, but it was very limited. And then it just took off."

The Grade 7 student at Algonquin Ridge Elementary School still has some difficulty speaking, "but he really is a miracle child," said his mom.

Mackenzie was like any other child until he was two years old, when his parents noticed changes in his social skills. They began wondering whether he was deaf.

"It's pretty hard, as a parent, to watch that," said Brad, a biologist with the Ministry of Natural Resources. "Your kid goes away and another one comes back."

The Allans put everything they had into Mackenzie's intensive behavioural intervention (IBI) treatment and it has worked for them.

"I can't dream big enough," said Brad. "He's come a long way. Now we're in a situation where we want him to learn."

Mackenzie's dream is to be a computer game programmer.

One of Mackenzie's strong points has always been his reading skills, his parents say. When he was in Grade 6, he used to read to kindergarten students.

"That was his way of being a champion," said his proud dad, adding his son also possesses strong math skills.

"He says he sees himself like an athlete," added Catharine, "because everything he does is a challenge. He sees himself as a hero, or an athlete."

Autism can be tough on families. The divorce rate for parents with autistic children is through the roof.

"We have a good foundation," Catharine said. "It's all about the family."

His father once worried that his youngest son would never play hockey. But Mackenzie, whose sports-loving family also includes two older brothers, signed up with the Barrie Christian Hockey League three years ago. The right-winger, who cheers for the Toronto Maple Leafs, scored his first goal last season. His parents say it has helped the boy with receiving instruction, learning about winning and losing, and team-building.

"You have to find the right way to motivate," Catharine said, adding Mackenzie also embraced scuba diving during a recent trip to Cuba.

rbowe@thebarrieexaminer.com

--------------------------------------------

One further comment.... "The divorce rate for parents with autistic children is through the roof" -- This is a media myth with no factual basis. In fact, research shows exactly the opposite -

"It is heartening to note that research has not shown that parenting a child with a disability always has an overall negative effect on the parents' relationship. Despite all the difficulties, couples with a child with an ASD have been shown to be no different from typical parents when it comes to reports of spousal support, respect for partner, or commitment.7 Another encouraging fact: we could find absolutely no support for the 80% divorce rate for families with a child with ASD commonly cited around the autism community.8,9 A study looking at divorce rates for families of children with assorted disabilities found an average increase (over the rate for couples with non-disabled children) of only 5.97%.10 An Easter Seals' survey of families with a child on the autism spectrum, moreover, found parents of a child with an ASD to be less likely to have ever been divorced than the parents of a typically developing child.11"


Thursday, October 15, 2009

Run Asia Run!


Alex is not the only autistic running in his 2nd Marathon this weekend....

Run Asia Run!!

Asia Renning is also taking on her 2nd full Marathon, The Detroit Free Press/Flagstar Marathon, Sunday.
Asia is hoping to qualify for Boston and we're hoping she does too! Run Asia Run!

You can follow Asia's running blog here: http://asiarenning.blogspot.com/
We'll let you know how she does.....

Thursday, September 24, 2009

Autism the boy is Alex Bain - Autism Speaks is just so Wrong


Autism the boy is Alex Bain

Autism is happy and sad
I like Autism
Autism makes me different
from my friends
That's OK

-Alex Bain, March 2000


We strive to promote Acceptance, Inclusion and
*Positive* Autism Awareness


Some others have a very different idea about what "Autism Awareness" is.

Part of Autism Speaks Mission is
"
raising public awareness about autism
and its effects on individuals, families, and society"


Their latest bit of "public awareness" is
beyond offensive
.


It is dehumanizing
hateful
stigmatizing
ableist
fear-mongering
shameful
propaganda.


"The new video is so extremely anti-scientific and unethical
that in my view there is a responsibility on all and any scientists in Autism Speaks' leadership, including anywhere
on their boards, panels, committees, etc., to take a stand."
-- M. Dawson



Watch the video: "I am Autism" (and read the comments)
Read a transcript of what is said in the video
Read a collection of the responses from the autistic & autism communities
Read another collection of responses from the autistic and autism communities
Join the Facebook Group "Protesting Autism Speaks "I am Autism" Video
Tweet using #autismspeaksfail to show your displeasure


Read Disability groups join to continue protest of Autism Speaks campaign
Read The NAS and Autism Speaks UK respond to "I am Autism"

Read the Press Release from (ASAN) condemning Autism Speaks and their video.
Read The joint letter, which carries support from 65 international, national, state, and local organizations from the cross-disability community, condemning Autism Speaks for demonizing autism in their "I Am Autism" video. Related Press Release.
Sign The petition at www.ipetitions.com/petition/AutismSpeaks/ to show your support for the joint letter.


Expect This post will be updated over time.....

Friday, June 5, 2009

Alex's New Race Shirt - Sneak Peek


A sneak peek at Alex's new race shirt....


Watch for it, starting this Saturday, at the Cornwall Classic....